Can I Sit with You?

The Real Meaning of Might

by Amanda Jones
Age 8 at the time

I had a pedestrian, mildly tortured school experience learning to sort between what mattered and what didn’t, with just the typical betrayals and embarrassments. It was my brother who suffered the brunt of pre-teen flailing, and watching what he went through taught me more than all the bullying I endured.

Marco was (and still is) my sweet older brother. As a child he was scrawny, friendly, funny, affectionate, and energetic. And he had Williams Syndrome, which meant he was a special needs kid. Only in those days no one had yet thought up political correctness, so my brother was just “retarded.”

Williams Syndrome is a genetic disorder with a long, scary list of symptoms. When I look up the most common of them, it says: “Unusual facial structure, developmental retardation, short stature, heart problems, and puffiness around the eyes. Personality traits include being overtly friendly, trusting strangers, and an affinity for music.” My brother had all of these. He still does.

For most of elementary school other children were kind to Marco. They included him in games and they’d even willingly invite him to their birthday parties. But at age 12 this swiftly changed. As hormones began their insidious creep, many friendships turned into outright cruelty.

My brother and I did not go to school together. He went to an all-boys school, and I went to an all-girls. But we lived opposite a park and would go there together almost daily. I was three years younger. He was my only sibling, my big brother, my friend, and often my rival and archenemy. I loved him. I didn’t know to be embarrassed of him, even when he laughed inappropriately loudly or let fly with the animal noises he was prone to making when overexcited. But as he got older he would embarrass the other kids, as if just knowing him made them uncool.

One awful day my mother was called to school early, bringing Marco home with red eyes even puffier than normal. Two former friends had cornered him and beaten him up in the bathroom, calling him Mongol, circus freak, animal. He could not understand what had happened, and his face registered only confusion and disorientation. And for the first time in my life I felt real, adult rage. It sped through me like fire, closing my throat and making me break out in sweat. I was eight years old and I had just felt the shock of injustice.

Marco stayed home for a week to recover. There were hushed phone calls and the low hum of my mother’s fury venting into the mouthpiece. Marco and I lived alone with our mother. Our father had hit the road with a younger woman when I was five. He couldn’t handle raising a “retard.” At the time I didn’t think much about what it must have taken for my mother to raise the two of us alone for so many years. Now I do, and I am staggered.

A month after the “incident,” Marco and I encountered the perpetrators at our park. My brother flinched when he saw them, his “overt friendliness” damaged. He wanted to go home. He started making noises. His hands came up over his head. The boys, angry that the “retard” had caused them innumerable hours of detention, strode towards him, their fists balling, mouths ugly grimaces. At first fear turned my legs and stomach soft. And then, like some sort of miraculous intervention, the rage hit me again and I became possessed. I raced towards the boys yelling words that had never dared cross my lips before.

“You bastards.” (I’d heard my mother call my absent father that often and suspected it was a terrible slight.)

“You stupid, mean little bastards. You assholes. You keep away from my brother!”

And my God, it worked. It actually worked. The boys didn’t know what to do next. They stopped, their faces froze and they stood there looking just like stupid little assholes.

The best part of all is that my brother started to laugh. He laughed his inappropriately loud laugh with a few animal noises thrown in for good measure. The boys sloped off, vanquished, with that sound at their backs. It was wonderful. Admittedly I was an eight-year-old girl and even mean boys probably knew better than to beat up on a small female child, but it was the first genuinely empowering moment of my life. And I guess I learned that it was actually possible to stand up against injustice.

Many years later, I used my brother shamelessly as an acid test for the men I dated. If they were embarrassed of my brother or they were mean or ignored him (and most did), they didn’t last long. They were filed in the “stupid asshole” category and dispatched. And then I met a guy who was different. He didn’t deal with Marco like he was retarded. He wasn’t overly condescending or patronizing or even sickly solicitous. He treated him like an adult who liked to laugh loudly, hug people, and dance erratically. He called him Big Man, which made Marco’s skeletal chest swell with pride. Greg was doing an MBA at an elite business school filled with future captains of industry who wore button-down shirts. One night, he invited Marco and me to a party with his fellow students. I was edgy, thinking that my brother’s unbridled enthusiasm for singing and dancing, or even the animal noises, might cause a scene, and I really liked Greg and didn’t want to have to dispatch him quite so quickly.

When we got there, Greg casually took Marco around, introducing him not as his girlfriend’s brother, but as his “buddy.” He gave Marco a beer and let him loose. Hours later, from across the room, I noticed a circle forming on the dance floor. With rising dread, I broke through the crowd to face what was happening. Marco and Greg were both lying on their backs, spinning in circles, breakdancing to “Red, Red Wine” by UB40. The crowd cheered and clapped and my brother hooted and glowed. Marco had found a hero, and I had found a husband.

I guess the moral to this story is that in the end, it’s much cooler not to be a stupid, mean bastard.


Here is an excerpt from Amanda’s reading of this story, from our Can I Sit With You Event at Book Passage in Corte Madera in August 2008:


13 Comments so far
Leave a comment

I love this story. I am certain my daughter will follow in your footsteps and choose friends and a partner by how they treat her brother.
I’m so glad to read that another sister blazed the trail!

Comment by DivaLea

Thanks for sharing your story Amanda. What a great way to figure out the kind of man you wanted to marry.
I also love that you “didn’t know how to be embarrassed” of your brother as a child. Yet another testament, I think, as to how well your mom managed.

Comment by jennyalice

Oh my god, I LOVED this story. Thanks for sharing it!

Comment by Pronoia

So wonderful!

Comment by Karianna

Fantastic story! I loved the photos and articles on your website, too.

Comment by doubletrouble

Love it. The ending had me in tears.

Comment by Sara

I love this story. Resonated with alot of things from my deep past in a beautiful, melancholy way. I don’t know you, but based on this, I want to. Loved it, loved it.


Comment by Anonymous

Such a fabulous story. Thank you so much.

Comment by Satchel Pooch

Fantastic story. It’s so touching!

Comment by Anonymous

This is a wonderful story, their are wonderful people out there to teach the ass holes and I hope learn to understand!

Comment by Anonymous


Comment by Andrew B. Clark

Made me cry – LOVE it!!

Comment by creatrix

Touching story, my daughters are quite protective of their brother with WS also.
Take Care

Comment by Cathy Mindel

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: